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What is Hospice?

More than just care for those with short life expectancy, it's about quality of life
 

 

Just what is hospice? Hospice is a special way of caring for people whose life expectancy is measured in months rather than years and for whom treatment for cure no longer seems appropriate. It’s a way for patients to remain pain-free in familiar surroundings – most often at home – near the people who love them.

Medical care doesn’t stop when a patient chooses hospice, but it does shift focus from life-prolonging treatment to comfort care. The emphasis is on the individual and the quality and significance of that person’s life. “Hospice is not about dying,” states Jean Chubb, RN,MSN, director of Doylestown Hospital Hospice. “It’s about quality of life.”

A team of caring professionals
The hospice teamworks together to help patients exercise asmuch control as possible over their lives during their final months and attain a level of physical, mental, and spiritual preparation for death that is comforting to them. The team typically includes:

  • Patient’s own physician – directs the medical care of the patient.
  • Registered nurse – makes regular visits to provide the full spectrum of skilled nursing care, including expert pain management and symptom control.
  • Home health aide – provides hands-on personal care, including feeding and bathing.
  • Social worker – assesses the ongoing needs and concerns of the patient and provides emotional support to the patient and family.
  • Bereavement counselor – offers support and grief counseling in both group and personal settings and provides ongoing bereavement support for one year after the death of the patient.
  • Chaplain – available for spiritual support and to serve as a liaison with the patient’s or family’s religious community.
  • Trained volunteers – make regular visits to assist with patient care, help with household activities, and stay with the patient so the family or caregiver can have some free time.
  • Hospice medical director – meets regularly with the hospice team and oversees the overall care of the patient.
  • The first priority of the hospice team is to make the patient physically comfortable and as pain-free as possible. Team members tailor other hospice services to the desires of the patient, working together to enhance the lives of both the patient and the family.

    The essence of caring
    In the words of the wife of one hospice patient, “I knew I wanted to care for my husband at home [with the help of hospice] during his remaining time with us, but the day I brought him home from the hospital I just felt completely overwhelmed. Then members of the hospice team started to arrive. I thought to myself, ‘Hospice is here and they’re going to help us go down this very difficult path.’ To me, this is the very essence of what caring should be.”

     
    Last Reviewed: June 2007

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